What is this Go Gold thing about?
Did you know that 175,000 kids are diagnosed with cancer each year? And in the U.S., one in five will not survive. I want to change that, so I’m raising money to find cures.
September is Childhood Cancer Awareness Month and the official color is gold. Much the same way that October is Breast Cancer Awareness Month and their color is pink. So, in support, I am calling my awareness and fundraising campaign Go Gold.
Why am I promoting this?
My nephew, Ty McCullar, was born on September 2, 2009, weighing 7 lbs. 12 oz. and was 21 1/2 inches long. On day one of life, Ty had what the doctors call an Apparent Life Threatening Event. He was lying on his back on the bed in the room with my sister, Lauren McCullar, and the nurse when he began to cough up mucus and turned blue.
The nurse was unable to get him to begin breathing so she pushed the emergency button and he was rushed to the NICU at Baptist Hospital. They were able to stabilize him at Baptist but later that evening he was transferred to Arkansas Children’s Hospital. Several days passed and Ty had failed multiple attempts to be taken off of the ventilator.
The doctors thought that he may have had a small jaw and that it might be pushing his tongue into his airway making it difficult for him to breathe. They then decided to take him to the operating room and do what they call a mandibular distraction which is basically fancy talk for moving his jaw bone forward. The doctors surgically broke his jaw and placed plates and screws so that they could move his jaw forward 15mm over the course of about 10-15 days.
Once Ty had recovered from having his jaw moved forward 15mm, they continued to try to take him off of the ventilator and always had problems. They eventually did a blood test that was sent to Chicago, IL to test to see if Ty had Congenital Central Hypoventilation Syndrome (CCHS). The test came back a few days later positive for CCHS.
On January 1, 2011, Ty had a seizure while he was in Texas and was med-flighted back to Arkansas. He underwent a MRI of his head and abdomen. The MRI of his head was normal but the MRI of his abdomen showed a large tumor that is on top of his liver, pushing up one of his kidneys, goes around his aorta and inferior vena cava, and wraps around his spine. They took a biopsy of the tumor and it was determined to be Stage 4 high risk neuroblastoma, which had metastasized to his arms and legs.
Since diagnosis, Ty has had over 14 rounds of chemotherapy, has had surgical resection of his tumor, and has had therapeutic MIBG at CHOP (Children’s Hospital of Philadelphia). He has had his tumor rescanned every 4 months since July 15, 2012 and his tumor is currently stable and not growing.
Through all of his treatments, Ty remains a happy, playful toddler. We are faithful that God will heal Ty and use him to further His kingdom. God definitely has great plans for Ty.
What can you do to help?
Please support me with a donation to the St. Baldrick’s Foundation. This volunteer-driven charity funds more in childhood cancer research grants than any organization except the U.S. government.
Your gift will give hope to infants, children, teens and young adults fighting childhood cancers.
So when I ask for your support, I’m really asking you to support these kids. I hope you’ll give what you can. Even if its $1.Donate
You can also help spread the word by using the social share buttons found at the top and bottom or on the left of this page. You don’t have to come up with anything catchy or know everything about childhood cancer. This page will do the talking for you. Help us get this information out to as many people as possible. It costs you $0.00 to click. 🙂
If you’d like to show additional support, you can change your social media profile photo and cover or header photo. Click the button below to find some suggested images. (Last updated 2014)
Here is a social media kit that you can use during the month of September to raise awareness and show your support.